Russ Harvey's Site - About Russ & His Interests

Our Story About Kidney Disease

We're Transplant Patients | Renal Dialysis | Michelle's Second Transplant
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Photo of Russ with Michelle

COVID Restrictions Remain for Us

Business Protocols | Masks Required | Medications Require Special Care

Even though many folks have been able to return to near-normal conditions, this is not true of transplant patients, including Michelle and I.

Changes to My Business Protocols

I've made significant changes to my business protocols, including restricting on-site and in-person services.

We do not permit non-essential visitors inside our house.

We are inself-isolation no visitors please.
STOP - No Visitors.

Significant Restrictions

This has meant significant restrictions in my consulting business on the on-site and in-shop services I am able to perform .

Clients can drop off computers for servicing or get support via email, phone or virtual meeting software.

Masks Required

Because masks are more effective when worn by everyone, we require visitors and clients to wear a mask as well as being fully vaccinated.

On-site Protocols

When I feel safe doing on-site visits, I must ensure that certain protocols are followed and that any locations we enter are safe.

Because of the significant risks, I am restricted from smaller spaces with either insufficient air flow or too many people. This affects the locations I will feel safe doing on-site or in-person services.

Thank you for understanding.

Why We're More Vulnerable

Transplant patients are more vulnerable than most.

Our anti-rejection medications are immunosuppressants — they suppress our immune system so that our transplanted organs aren't rejected.

Reduced Protection from Vaccines

We are both fully vaccinated and continue to get boosters as recommended by our transplant clinic.

Vaccination provides much less protection to transplant patients than the general population.

Despite three doses of vaccine, some transplant recipients will continue to have a poor response, about 40% to 50% of the time compared to the general population and could remain unprotected.

 

Because of this, it is critical that household contacts and healthcare workers be fully vaccinated and that extra cautions should still be taken.
Kidney Foundation

The Consequences Severe

The consequences of being infected with even the “milder” variants of COVID-19 can be severe.

Compared with the general vaccinated public, [organ-transplant recipients] are 82 times more likely to get breakthrough infections and 485 times more likely to be severely ill.

 

Should they get infected, their risk of hospitalization is a coin flip. Their risk of death is one in 10.
The Atlantic

I've read reports from clinics stating that one-in-five transplant patients infected with COVID-19 have died.

Wear a Mask

We require everyone to wear masks and keep their physical distance so that we can stay safe.

Our transplant clinic team mandates that we only meet with people that are fully vaccinated and wearing a suitable mask as one of the “extra cautions” mentioned above.

Several scientific studies have concluded that mask use helps control the spread of COVID. One of the most recent was published in the peer-reviewed journal, the Proceedings of the National Academy of Sciences (PNAS), this spring. It analyzed mask-wearing in several countries and found that it was associated with a notable reduction in transmission.
Toronto Star

Our Outside Activities Restricted

We MUST continue to restrict our activities in order to avoid being infected with COVID-19. We quarantine at home, except for medical appointments and blood work. Other outside activities are severely restricted.

[P]eople who are immune-compromised — because of chronic illnesses, medical treatments or medications — are at much greater risk of both contracting and suffering more severe symptoms from infections, including COVID-19.

 

Aggressive physical distancing is wise and total isolation probably a good idea, if you can tolerate it.
André Picard

It also means we've been unable to attend in-person church services or eat inside a restaurant. Shopping trips are for essentials and completed as quickly as possible.

We were fortunate to have help from friends that supported us by picking up groceries and other essentials when conditions were especially unsafe for us.

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We're Transplant Patients

My Story

I spent almost a year on a pre-dialysis diet then began peritoneal dialysis (CAPD) four times a day. Not only did this consume a great deal of my life, but I was faced with the very real possibility that my life would be significantly shortened.

My Kidney Transplant

After waiting 2 1/2 years, I received a kidney transplant on April 17th, 1996.

My brother, Todd, donated one of his kidneys — literally the gift of life!

With this transplant, I no longer needed to schedule my activities around four daily sessions of peritoneal dialysis and I have far fewer diet restrictions.

Medications Require Special Care

Because I'm on immune suppressants (anti-rejection medications) I have to be more careful than most people. This is an issue I take seriously and have meant significant continuing restrictions in our activities.

Michelle's Story

In 2002, I married Michelle, also a kidney transplant. It is unlikely we'd have been able to marry if we both didn't have healthy renal transplants and probably neither of us would be alive today.

  • My kidney transplant was on April 17, 1996.
  • Michelle's first kidney transplant was on December 4, 1979.

Michelle's Transplant Failing

Both of us continued to enjoy stable renal transplants until 2016 when Michelle was told that her transplant's health was declining.

This resulted in a drastic reduction in her ability to enjoy an active lifestyle and I became her caregiver (while still acting as my mother's caregiver).

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Back on Dialysis

Michelle began hemodialysis on November 8, 2017 — barely a month before her transplant's 38th anniversary on December 4th.

Photo of Michelle during her hemodialysis treatment
Michelle on dialysis, November 8, 2017

She spent Monday, Wednesday and Friday mornings in the Royal Jubilee Renal Dialysis Unit hooked up to a hemodialysis machine while waiting for a second transplant.

The average wait time is too long because not enough people are registered as organ donors in BC.

Being on dialysis was challenging because her energy level was low. She was unable to do much of what she had been capable of when her kidney transplant was fully-functioning.

My New Role as Caregiver

Earlier in our marriage, Michelle did most of the cooking, cleaning and many other tasks.

As her caregiver, I had to take over the daily tasks that she was no longer able to manage. I also accompanied her to her dialysis sessions where I assisted Michelle as well as other patients and staff.

I did this while working to maintain Russ Harvey Consulting.

Caregivers Have an Important Role

Many families are suddenly forced to take on the role of caregiver, often looking after aging parents while their own children are still in the home.

Caregivers have an important role in keeping patients (including renal patients) healthy and out of the hospital. This reduces the strain on our health care system but does add to family stress.

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Michelle's Second Transplant

While on dialysis on Monday, December 23, 2019, Michelle was told that she was going to receive another kidney transplant.

She was to have a short dialysis session then head to Vancouver General Hospital via BC Ferries as soon as possible for a kidney transplant.

Checking in at VGH T4D

Once there, Michelle began the process of meeting the initial admissions requirements, then we were taken up to Solid Organ Transplant on the 4th floor where she was assigned a bed.

We were aware that there was a chance the kidney would be declared unsuitable and we'd return to Victoria where Michelle would resume dialysis until another suitable match was found.

The organ was retrieved later that afternoon and around 9:00 p.m. we knew the kidney was viable.

The Surgery

Michelle's initial late-evening surgery was cancelled by an emergency, but at 4:30 a.m. on December 24th she was taken to the operating room for her transplant.

We'd both been up since 6:30 the previous morning.

Recovery

During the post-surgery phone call at around 9:30, the surgeon described her surgery as “challenging but successful.”

I got to see her in post-surgery recovery late that morning. Her new kidney was doing a great job of cleaning her blood and creating urine.

Michelle then began the long process of healing and restoring her strength.

Discharged on New Year's Eve

Michelle was discharged from Vancouver General Hospital late on December 31, 2019, with the expectation that we'd stay in Vancouver for up to 3 months or until the transplant team felt she could be managed by the Victoria Transplant Clinic.

The First Two Months Post-Transplant

We were very fortunate to stay in a furnished one-bedroom suite on the ground floor at Oakway Manor, on 10th Avenue West, across from VGH Emergency. Alfred and his grandson, Clint, both made our stay much easier.

Vancouver Transplant Clinic

In the following two months, Michelle and I would walk to the Gordon and Leslie Diamond Health Care Centre, across Laurel Street from Vancouver General Hospital, then wait for the VGH lab on the ground floor to open to do her blood work.

We'd then head up to the fifth floor and report to the Vancouver Transplant Clinic where she would see a nurse and nephrologist (renal doctor) as well as any other required consultations such as the pharmacy to renew her anti-rejection medications.

This took much of the morning (from about 6:30 until 11:30 but sometimes longer).

For the first while, we went to Transplant Clinic twice a week — Tuesday and Friday mornings. During this time her staples were removed then the drain to her new kidney.

Later clinic was reduced to once a week on Wednesdays until the stint had been removed and the doctors were satisfied that she was no longer is danger of rejection.

The Return Home

On February 19th we were told we'd be able to return home to Victoria.

On February 21st our friend, Lenna, brought her car over from Victoria and, after packing up our belongings, food and other items we'd acquired while in Vancouver, caught the 5:00 p.m. ferry home.

A few days later, Michelle and I had our Christmas celebration, opening presents that had been waiting under the tree prior to our rushed December 23rd trip to Vancouver.

Michelle had her first appointment at Victoria Transplant Clinic on March 10th at which time she ceased to be a Vancouver Transplant Clinic patient.

We're Thankful

We're thankful for the wonderful care before and after her transplant at VGH T4D ward as well as during the two months of post-transplant follow up at Transplant Clinic. The doctors, nurses and other staff all helped us through a difficult time.

The Pandemic Arrives

We arrived back in Victoria shortly before the COVID-19 pandemic arrived in early March. Michelle's March 10th clinic was the last one to be held in person. Clinics were conducted by phone or virtual meeting connections.

While we both have to be careful, Michelle was even more vulnerable as a first-year post-transplant patient.

Our freedom continues to be much more restricted than for most people, even though mandates have ended and most people think that the pandemic is over.

 

Register Your Wishes

Wear green in support of organ & tissue donation

Do you ever think about Organ Donation?

I didn't think about it much until my doctor told me my kidneys were failing.

An average of 15 people every day learn that their kidneys have failed and it can be a very long wait for a transplant — if you are eligible.

If you have never considered organ donation, please fill out the organ donor registration (you can do it online in just a few minutes).

I can't emphasize enough the difference it can make in people's lives and to their families.

One organ donor can benefit over 75 people and save up to 8 lives. That's 8 lives that are greatly improved when one person chooses to be a donor.

It is far more likely that you'll require a transplant than become a donor — even if you're registered.

Transplantation is supported by all major religions and the process is respectful of the donor body.

About Kidney Disease

I hope that our story has helped you to understand some of the challenges of living with kidney disease.

I encourage you to take a look at the information on this site about kidney disease and the BC Organ Donor Registry.

There is much that you can do to ease the wait times for transplants.

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Updated: October 5, 2022